I’m making a brief return, I would like to say it’d be a longer, more permanent one but at the moment we are still waking up each morning and taking the day as it comes. No two day’s are the same with Paige, and at the moment I still wake up each morning wondering if by the evening I’l be gazing a hospital walls again. I’d love to say different, I’d love to be more optimistic, but part of me feels it’s just a matter of time. I hope I am very wrong.
We were told that within 6 months Paige would be completely pain free post surgery, riding around in a ‘normal’ wheelchair, life would be good. Well, we’re 8 months in now and if you’d like to see Paige sat up, pain free in a ‘normal’ wheelchair then do NOT scroll to the end of this post.
At the moment it’s a bedsore, stiffness, inactive bowels and wheezing caused by lack of movement.
I’m not going to moan on in this post, whilst still fighting daily to get her rehabilitated I am also trying to accept this new chapter. Our lives have changed beyond all recognition. I’m not sure the other children are aware of quite how much because as mother, father, and grandmother we all work to still provide the other children with a degree of normality. Paige is aware of course, and she does get upset and she doesn’t like to see old video footage of herself on beaches or old pictures of herself in the new forest. It’s hard, we try to get her to look forward to the future but that’s hard to, we don’t want her to feel we have lied. She has already said she thought the surgery we made her have would make her better.
I used to find blogging cathartic, but not at the moment, talking is hard enough some days. I can put a smile on for the children’s sake but that’s about as much as I can manage sometimes. When things get really bad I just look forward to sleeping, it’s the one time my mind stops working.
Anyway these are a bunch of pics from my phone, they show occasions, days, things that I didn’t manage to blog about. My son’s 9th birthday, our easter egg hunt, our visits from much loved family and friends, our anniversary weekend in the Lakes (it rained continually haha :-)). The arrival of our baby tortoises, Summer starting ballet, her 5th birthday & first sports day. Kyle’s football trophies, very proud of my ace goalie. Time spent at our allotment. Days in the garden, a day at the coast (not many days out this year). The girls messing about in my wedding dress and Imogen’s first ever wash out pink hair dye! (permanent or semi permanent not allowed ;-))
There’s been other lovely moments too, especially Imogen receiving an award for contribution to the community from school and her being made a prefect. It’s been a good year for the charity I chair too, although I have to crack on with raising more funds again come September time.
I’ve just purchased some driving test DVD’s too as that’s my next big hurdle!
I apologize if I sound a bit miserable, I am OK, it’s just been a long 8 months and as yet no end in sight, but it’ll come in time I hope
Hope you enjoy the pics
And whilst all this has been happening…